The use of certain iPad apps can be very effective for encouraging children with Cortical Visual Impairment (CVI), sometimes known as Cerebral Visual Impairment, to use their functional vision. The backlighting on devices like the iPad is greatly helpful, and the variety of apps can […]

Cortical Visual Impairment, or CVI, is the leading cause of visual impairment in babies and children in developed countries. It is a life-long visual impairment related to dysfunction of the brain rather than the eyes. In other words, the eyes work fine but the brain […]

Help family, friends, educators and medical providers understand CVI! In this 3-part video series, my daughter’s Early Childhood Vision Consultant, Tara Tompai, answers three important questions: What is Cortical Visual Impairment? What are the signs of Cortical Visual Impairment? How do you treat children with […]

Recently, I shared my family’s CVI story on Kaleidoscope: The Cortical Visual Impairment Podcast. The host, Jessica Marquardt is also the mother of a child who has CVI. In my episode, I describe the day during my pregnancy when I learned about my daughter’s complications. […]

My husband and I first met Lotfi Merabet at the 5th Annual Perkins CVI Symposium, but we were aware of his research in neuroplasticity and Cortical Visual Impairment (CVI) long before then. He took part in a very interesting panel discussion and we later had […]

Krissy Vannoy is a Perkins-Roman CVI Endorsed Teacher of the Visually Impaired (TVI) in West Virginia, USA. I recently met Krissy through a Facebook group for Cortical Visual Impairment (CVI). She was generously answering parents’ questions and she was very kind to answer mine as […]

I recently crossed paths with Stephanie Duesing, author of the newly released book, Eyeless Mind: A Memoir about Seeing and Being Seen. Once I began reading her book, I could not put it down. A true page-turner, especially because it’s written about a topic so […]

Sometimes the universe puts guiding stars in your path, especially in challenging times. Tara Tompai, my daughter’s Early Childhood Vision Consultant is mine. She instilled in me the confidence that my daughter’s vision would improve and the understanding that there is lots to be done […]

Recently, I was fortunate to connect with Lisha Jo Yochimowitz, a highly experienced Teacher of the Visually Impaired (TVI) located in Pennsylvania, USA. You may have come across the beautiful website seeingsadieandcvi.com and if you haven’t, you must! It’s here you will find a breathtaking […]

We sit down to eat our lunch as we always do. My 14-month old daughter patiently waits for me in her high chair directly facing the white wall. I have her red bowl and spoon handy. I say, “It’s time to eat.” Sitting next to […]