Very recently, we learned that our daughter has a gene mutation called COL4A2. This rare gene mutation can manifest itself in a wide variety of ways and there is no telling when, if and how it will manifest. Optic nerve hypoplasia (ONH) can be one […]

This post is part of a mini blog series documenting four weeks of Constraint-induced Movement Therapy (CIMT). Our day starts bright and early at the CIMT clinic in Manchester, UK. It’s the first day of my daughter’s four week intensive rehabilitation program and I’m a […]